Version: 1.0.1 | Published: 9 Dec 2025 | Updated: 0 days ago
Palliative and End of Life Care Standard
Dataset
Summary
Type:
Information standards
Effective From:
01 November 2025
Applies To:
The standard is for use across the whole of health and social care and for anyone requiring palliative and end of life care.
Topics:
- Care
- Care records
- Continuity of care
- Electronic Health Record
Care Settings:
- Ambulance (Urgent and Emergency Care)
- Care home
- Community health
- Dentistry
- GP / Primary care
- Home
- Hospital
- Maternity
- Mental health
- Military
- Pharmacy
- Prison
- School
- Social care
- Transport / Infrastructure
- Urgent and Emergency Care
- Walk in centre
Documentation
Associated Media:
Description:
People at or near the end of life should receive personalised care that reflects their wishes and priorities, improving their experience and supporting sustainable NHS services. The Palliative and End of Life Care Standard ensures professionals and individuals have the right information to support decision making and aligns with the Universal Principles for Advance Care Planning.
This standard should be used to support the standardised recording of information related to palliative care and end of life forming the core content of information to be held in electronic palliative care co-ordination systems (EPaCCS).
This information may already be recorded in clinical systems using legacy coding that does not conform to the coding requirements set out in the standard. The coding requirements in the standard apply to new data entry.
The standard does not address the issues of migrating legacy data and clinical concepts to conform with the coding requirements set out in the standard. Implementers of the standard will need to be mindful of pre-existing data.
Origin
Name:
NHSE-SD Data Catalogue